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Lee-Mount Vernon Sports Club is hosting a Mini Kicker Summer Camp FUNDRAISER.  The Mini Kickers Director, Nicole Canzoneri, will be leading up a mini kickers summer camp for 4 year olds along with her son, Noah.  All proceeds will be donated to National MPS Society earmarked for Morquio Syndrome Research in honor of Annabelle.  Space is limited so sign up EARLY. To register your mini kicker, go to http://www.lmvsc.org/home/default.asp?menu_category=Summer%20Camps

Annabelle will be following all the excitement through pictures as she will be up at Dupont Hospital for hip and knee surgery in mid July.  We will be back home by the end of July.  Annabelle will be in a full body spica cast for six weeks and then intensive therapy to get her back on her feet.  We are so excited about this fantastic fundraiser and we are honored to know that many of her friends will be kicking around a ball in her honor to raise funds to stop the progression of Morquio Syndrome..  Please send us pictures of all the fun!!!!




October 4, 2009-Raised $35,000 for Morqiuo Syndrome Research.  All proceeds were donated to National MPS Society and earmarked specifically for Morquio Research in honor of Annabelle Bozarth

Thank you to all the wonderful donors for making this fundraiser such a gigantic success!

Stay Tuned for the 3rd Annual Mad Hatter Tea Benefitting Morquio Research in June 2011!  If you want to be on the hostess committee or become a future sponsor, please don't hesistate to email me at stephbozarth@yahoo.com




Sipalda Jewelry Fundraiser-IN partnership with Lauren Birchmeier/ September 2008 Shopping fundraiser-Money raised-TBA

Gymboree PlayDate Fundraiser (Alexandria, VA)-Raised approx $400   www.gymboreeclasses.com  Alexandria, VA

Southern Living at HOME with consultant Michelle Rogers-Raised over $3000   www.southernlivingathome.com/michellerogers

Mad Hatter Tea Party to benefit Morquio Syndrome 2008-Raised over $52,000

Pat Magee Band VIP Ticket Fundraiser-Raised $600  www.patmcgeeband.com

Mad Hatter Tea Party and Family Meeting-Fall 2009/ Plans still in progress


Mad Hatter Tea to Benefit Morquio Syndrome Research 2008

Mr. Knick Knack! donated his talent and time to entertaining the kids at the Mad Hatter Tea.  The kids went wild!!!  During his performance, all the parents had a chance to bid on the 80+ silent auction items!

The Rhuenke Family traveled from PA to join us at the Mad Hatter Tea.  Carly Rhuenke (sitting in front) was reacently named the "face of Morquio" to have her picture in NY Times Square in efforts to raise more awareness about MPS.


Pat Magee, Stephanie, and Belle, prior to the Pat Magee Concert

Pat Magee Band Percussionist Chardy and Belle backstage prior to concert.  Belle got the royal treatment and loved the concert!

f you would like to join us with fundraising for Morquio Syndrome, please contact me at stephbozarth@yahoo.com